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Children's Disability List of Mailing Lists

Children's Disability List of Lists

This is page two of the Children's Disability List of Lists - a validated directory of discussion lists, forums, support groups, listservs and mailing lists for families of children with disabilities and special needs.

Page 2 Disability Lists/Groups Page 1 Disability Lists/Groups

Learning & Education Groups

Motor & Movement Lists
Neurological / Brain Impacts
Obessive Compulsive Disorder (OCD)
Prematurity List Groups
Sensory Integration Groups
Speech & Communication
Vision Impairment List Groups
ADD and ADHD
Adoption List Groups
Allergies and Asthma List Groups
Autism, Aspergers and PDD
Birth Defects (Congenital)
Down Syndrome List Groups
Feeding Support List Groups
General Children's Disabilities Lists
Genetic Impacts

Children's Disability List of Mailing Lists

Learning & Education Mailing Lists

Reed Martin Sped Law (Special Education Law)
This was a fantastic resource - a discussion list of special education laws and advocacy techniques from Reed Martin, J.D. But it became a pay-for service in 2008, so I do not know if it remains as good as it was.
To Join: Pay $15 at http://www.websitetoolbox.com/mb/power.

SpedTopics (Special Education Topics)
Psychology and psychiatry article summaries are posted routinely on this listserv for the special education community.
To Join: Send a blank email to SpedTopics-subscribe@yahoogroups.com or join online.

IEP Guide (Individual Education Plan)
High volume group with reprinted articles, links and support for IEP, Special education, 504 ,etc. Be aware that you will receive by email an avalanche of archived files on the IEP process, upon joining.
To Join: Send a blank email to IEP_guide-subscribe@yahoogroups.com or join online.

Dyspraxia Families
This British support group has been formed as a bridge for parents of dyspraxic children and adults with dyspraxia, based on the adult Dyspraxia Chat List. Dyspraxia (Apraxia) is the generic term used to cover a heterogeneous range of disorders affecting the initiation, organization and performance of action. Dyspraxia is also known as developmental coordination disorder and may also be present in people with autism spectrum disorder, dyslexia and dyscalculia, among others. It is a learning difficulty resulting from an immaturity of the way the brain processes information, so that messages not being fully transmitted to the body.
To Join: Send a blank email to DyspraxiaFamilies-subscribe@yahoogroups.com or join online.

Dyslexia Support
Mailing list is for the discussion of dyslexia to exchange ways of helping school aged children. Open archives.
To Join: Send a blank email to DyslexiaSupport-subscribe@yahoogroups.com or join online.

Dyslexia Support 2
This list is a support list for parents of children who are dyslexic.
To Join: Send a blank email to DyslexiaSupport2-subscribe@yahoogroups.com or join online.
Listowner: Annette Marshall

GT-Special (Gift Talented Special)
A support mailing list for parents of children who are gifted and also have a learning disability and/or other neurological problem(s).
To Join: Send an e-mail with the message subscribe gt-special to listserv@listserv.icors.org or join online.

GT-Spec-Home (Gifted Special Needs Homeschooling)
Home-schooling gifted children with special needs.
To Join: Send an e-mail with the message SUBSCRIBE GT-SPEC-HOME to listserv@listserv.icors.org or join online.

HKWD (Homeschool Kids with Disabilities)
The mailing list for issues related to teaching a child with any special educational need at home.
To Join: Send an empty message to hkwd-subscribe@yahoogroups.com or join online.
Listowner: Maaja

Homeschooling Extraordinary Kids
For parents of children who are gifted in one or more areas but also have a learning difficulty, autism, etc..
To Join: Send an empty message to HomeschoolingExtraordinaryKids-subscribe@yahoogroups.com or join online.

Motor Impairment Mailing Lists

Bifida-L
The original mailing list for people with spina bifida as well as parents, siblings, and others.
To Join: Send a blank email to bifida-l-subscribe@yahoogroups.com or join online.

SB Moms N Dads (Spina Bifida Moms and Dads)
Support list for families and caregivers of children with spina bifida and adults with spina bifida. An active list.
To Join: Send a blank email to SBMoms-N-Dads-subscribe@yahoogroups.com or join online.
Listowner: Kim Zink

Dysgraphia
This list is for parents that have children with dysgraphia (difficulty with handwriting).
To Join: Send a blank email to dysgraphia-subscribe@yahoogroups.com or join online.

C-Palsy (Cerebral Palsy)
Listserv for parents who have a child with Cerebral Palsy.
To Join: Send an email with the message, SUBSCRIBE C-PALSY Your Name to listserv@listserv.icors.org or join online.
Listowner: Bill McGarry

CP PARENT (Cerebral Palsy Parent)
Listserv for parents who have a child with Cerebral Palsy.
To Join: Send an email with the message, SUBSCRIBE CPPARENT Your Name to listserv@listserv.syr.edu or join online.
Listowner: Paul Sheridan

Hemi Kids (Hemiplegia Kids)
Listserv for parents of children with hemiplegia (a type of cerebral palsy) or parents of children who have had a pediatric stroke.
To Join: Send an email with the message Subscribe HEMI-KIDS Firstname Lastname to listserv@listserv.icors.org or join online.
Listowner: Nancy

I-CAN International Child Amputee Network
Listserv for parents of child amputees and adults who are congenital or early acquired amputees.
To Join: Send an email with the message, SUBSCRIBE I-CAN Firstname Lastname to listserv@listserv.icors.org or join online.
Listowners: Bill Baugh

Kid Power
Support group for parents whose children are mildly affected by cerebral palsy or other disabilities.
To Join: Send a blank email to KidPower-subscribe@yahoogroups.com or join online.
Listowner: April Hernandez

Neurological Brain Impacts Mailing Lists

Childhood Epilepsy
Active mailing list to support parents and other care-givers of children diagnosed with a form of epilepsy.
To Join: Send a blank email to childhoodepilepsy-subscribe@yahoogroups.com or join online.

Parents of Children with Epilepsy
A parent group for childen with epilepsy.
To Join: Send a blank email to Parents-of-Kids-with-Epilepsy-subscribe@yahoogroups.com or join online.

PVL (PeriVentricular Leukomalacia)
A high quality mailing list for parents of children with Periventricular Leukomalacia.
To Join: Send a blank message to pvl-subscribe@yahoogroups.com or join online.
Listowner: Maureen Schneeberger

Hydranencephaly
Mailing list for parents, families and caregivers of children with hydranencephaly.
Subscription To Join: Send a blank email to hydranencephaly-subscribe@yahoogroups.com or join online.
Listowner: Barb Aleman

Plagiocephaly
Support group for families of children with Positional Plagiocephaly. "Plagio" is a deformation of the skull caused by any consistent external pressure such as inutero constraint, back sleeping, etc, or encouraged by torticollis, prematurity, etc
To Join: Send a blank email to Plagiocephaly-subscribe@yahoogroups.com or join online.

Microcephaly
Discussion list for parents of children (of any age) with Microcephaly and related developmental disabilities. Share stories about your kids ups and downs, get advice and support, or just have someone to "listen".
To Join: Send a blank email to microcephaly-subscribe@yahoogroups.com or join online.

Newborn Jaundice
This listserve is to provide information and emotional support to parent's of children diagnosed with kernicterus or hyperbilirubinemia (high bilirubin). Kernicterus is a rare neurological disorder characterized by excessive levels of bilirubin in the blood during infancy. Symptoms may include lack of energy (lethargy), poor feeding habits, fever, and vomiting.
To Join: Send a blank email to newbornjaundice-subscribe@yahoogroups.com or join online.

NEURO Network (Neurodevelopmental Education Understanding Reorganization Options Network)
Support group for parents whose children have been diagnosed with or are experiencing issues such as: SID (sensory integration dysfunction), RAD (reactive attachment disorder) or attachment issues, PTSD (posttraumatic stress disorder), ODD (oppositional defiant disorder), ADD/ADHD, anxiety, autism-spectrum disorders (including Aspergers and PDD-NOS), learning disabilities, and speech & language delays. Many of our children are adopted, although parents of biological children experiencing these issues are also welcome.
To Join: Send a blank email to NEUROnetwork-subscribe@yahoogroups.com or join online.

PVL (PeriVentricular Leukomalacia)
This list is to provide support and information to parents of children with Periventricular Leukomalacia. Discussions are welcomed about finding more information, raising a child with this disability and for applauding their many achievements.
To Join: Send a blank email to pvl-subscribe@yahoogroups.com or join online.

TS Parents (Tourette's Syndrome Parents)
An email group for parents of kids who have Tourette's Syndrome and related disorders like ADHD, OCD, Bipolar and high functioning Autism. Chatty. Also several associated lists.
To Join: Send a blank email to TSparents-subscribe@yahoogroups.com or join online
Listowner: Patti

Obsessive Compulsive Disorder (OCD)

OCD and Parenting List
Online support group for parents of children with OCD. advised by Dan Suport for families of children with OCD. Professional advisors include: Dr. Geller (massgeneral.org/pediatricpsych/staff/geller.html), Gail B. Adams, Ed.D. (www.ocdawareness.com), Tamar Chansky, Ph.D. (www.worrywisekids.org), and Aureen Wagner, Ph.D. (www.lighthouse-press.com).
To Join: Send a blank email to ocdandparenting-subscribe@yahoogroups.com or join online.
List administrtor: Louis Harkins. Moderators: Wendy Birkhan, Chris Castle, Cindy Joye, Kathy McDonald, and Gail Pesses.

OCD Family
Our family support group is for husbands, wives, sisters, brothers, friends, other loved ones of those afflicted with OCD. We have a fair balance of parents who have children afflicted w/OCD as well as wives with a husband who has OCD, and husbands who have a wife w/OCD.
To Join: Send a blank email to ocd-family-subscribe@yahoogroups.com or join online.

Prematurity Mailing Lists

Go to Premie Mailing Lists, Groups, and Forums

Sensory Integration Mailing Lists

Sensory Integration Group
Discussion group for sensory integration; for information, education, and therapy related to sensory integration; for support of families dealing with sensory issues, children having behavioral and/or neurological difficulties, identifying triggers, and looking at solutions.
To Join: Send a blank email to sensoryintegrationgroup-subscribe@yahoogroups.com or join online.

Sensory Integration Dysfunction
Sensory Integration Dysfunction is as difficult to deal with for the parents, as it is for the children that are diagnosed with it. Here, we can swap ideas and get support and advice on how to deal with your child, the school system, etc...
To Join: Send a blank email to sensoryintegrationdysfunction-subscribe@yahoogroups.com or join online.

TLC-SID (Treat the underLying Causes of Sensory Integration Dysfunction)
This group is for parents and professionals who want to talk about how to Treat the underLying Causes of Sensory Integration Dysfunction (hence TLC-SID). The discussions of this group are related to diet, supplements, homeopathy, alternative therapies/treatments, medical testing or anything related to helping us understand the underlying problems so that they can be addressed most effectively.
To Join: Send a blank email to TLC-SID-subscribe@yahoogroups.com or join online.

Shadow Syndrome Kids
Mailing list for parents of children that have been diagnosed with mild forms of disorders like Asperger's Syndrome,CAPD,SID,ADD, ADHD or have a number of comorbid syndromes making it difficult to understand what is going on with him/her.
To Join: Send an email to ShadowSyndromeKids-subscribe@yahoogroups.com or join online.

Shadow Syndrome Teens
Mailing list for parents of children that have been diagnosed with mild forms of disorders like Asperger's Syndrome,CAPD,SID,ADD, ADHD or have a number of comorbid syndromes making it difficult to understand what is going on with him/her.
To Join: Send an email to ShadowSyndromeTeens-subscribe@yahoogroups.com or join online.

Speech & Communication Mailing Lists

Parent Deaf HH (Parents of Deaf or Hard of Hearing Children)
Support group for parents of deaf or hard of hearing children. This long term discussion list is sponsored by the American Society for Deaf Children (ASDC)
To Join: Send the message SUBSCRIBE PARENTDEAF-HH to PARENTDEAF-HH@LISTSERV.KENT.EDU or subscribe online.
Listowners: Benna Timperlake and Sherry Ernsberger

Apraxia Kids
A resource, discussion list for families of children with developmental apraxia of speech (verbal dyspraxia) and the professionals
that care about them.
To Join: In the body of your email, send the message, SUBSCRIBE APRAXIA-KIDS to LISTSERV@LISTSERV.SYR.EDU join online
Listowners: Sharon Gretz

Auditory Processing
Individuals who have normal hearing but have difficulty with discriminating words, listening in background noise, trouble following ongoing conversation, and seem to have trouble paying attention when others are talking, may have a central auditory processing disorder (CAPD). Open archives.
To Join: Send a blank email to AuditoryProcessing-subscribe@yahoogroups.com or subscribe online.

CAPD (Central Auditory Processing Disorders)
Central auditory processing disorders, primarily parents and educators. High volume, active list.
To Join: Send the message, SUBSCRIBE CAPD to listserv@listserv.icors.org or join online.
Listowner: Jay Lucker

Communicating
Parents and professionals help children with earning disAbilities (Autism, Down Syndrome, PDD/NOS, etc.) communicate effectively using the methods of Dr. James D. MacDonald of "Communicating Partners."
Subscription: Send a blank email message to communicating-subscribe@yahoogroups.com or join online.
Listowner: Jenny Wendling

Late Talkers
Latetalkers is a discussion forum for anyone interested in the late development of speech in children, regardless of cause. It is a low volume and friendly list.
Subscription To Join: Send a blank email to Latetalkers-subscribe@yahoogroups.com or join online.
Listowner: Karen

Childrens Apraxia Net
Late talker/speech delay vs. apraxia? The Cherab Foundation is a nonprofit organization working to improve the communication skills and education of children with speech and language delays and disorders. While we outreach to any "late talker" our area of emphasis is verbal and oral apraxia, severe neurologically-based speech and language disorders that hinder children's ability to speak.
To Join: Send a blank email to childrensapraxianet-subscribe@yahoogroups.com or join online.

PACT (Promoting Augmentative Communication Together)
A listserv for anyone interested in the field of augmentative and alternative communication (AAC).
To Join: Send a blank email to PACT-subscribe@yahoogroups.com or join online.
Listowner: Pam Harris

Vision Mailing Lists

APHAKIC (Association of Parents Having A Kid In Contacts)
Association of Parents Having A Kid In Contacts is designed to provide support for parents and health care professionals caring for young children who have had cataracts. Despite the name, glasses-wearers are welcome.
To Join: Send a blank message to aphakic-subscribe@yahoogroups.com or join online.

Blind Home Schooler
A small but active group, mostly parents with a few VI teachers and aides. All participants are interested in homeschooling, some full time and others as supplemental education.
Subscription To Join: Send a blank email to blindhomeschooler-subscribe@yahoogroups.com or join online.
Listowner: Debbie Day

BVI Parents (Blind or Visual Impairment)
BVI-Parents is a list for parents of children who are blind or visually impaired to network and share ideas and experiences.
Subscription address: Send an e-mail to bvi-parents-subscribe@yahoogroups.com or join online.
Listowner: Sarah Blake

Cortical Vision Impairments
Please join if you are interesting in discussing CVI and issues with that diagnosis.
Subscription address: Send an e-mail to Corticalvisionimpairments-subscribe@yahoogroups.com or join online.
Listowner: Bridget A. Bailey

Lazy Eye
A an acitive support list for parents of children with amblyopia, strabismus or other conditions associated with "lazy eye."
Subscription address: Send an e-mail to lazyeye-subscribe@yahoogroups.com or join online.
Listowner: Kate

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